Noreen M. Aziz, MD, PhD, MPH
Senior program director, Office of Cancer Survivorship, National Cancer Institute, Washington, D.C.
Diane Balma, JD
Vice president of public policy, Susan G. Komen for the Cure, Dallas; breast cancer survivor
Joyce Bichler, ACSW
Senior vice president/program, research and education, Gilda's Club Worldwide, New York City; gynecologic cancer survivor and author
Diane S. Blum, MSW
Executive director, CancerCare Inc., New York City; editor-in-chief, American Society of Clinical Oncology's People Living With Cancer website, www.plwc.org
Winfield A. Boerckel, MSW, MBA,
LCSW-R
Director, CancerCare's LIVESTRONG & National Relations Program, New York City
Richard N. Boyajian, RN, MS
Nurse practitioner, Lance Armstrong Foundation Adult Survivorship Clinic, Perini Family Survivors' Center, Dana-Farber Cancer Institute, Boston
Susan Braun, MA
Executive director, ASCO Foundation, Washington, D.C.; founding director, Fund for Women's Health at Commonweal, Bolinas, Calif.
Elizabeth Clark, PhD, ACSW, MPH
Executive director, National Association of Social Workers, Washington, D.C.; past president, National Coalition for Cancer Survivorship
Craig Earle, MD, MSc, FRCPC
Medical director, Lance Armstrong Foundation Adult Survivorship Clinic, Dana-Farber Cancer Institute; associate professor of medicine, Harvard Medical School, Boston
Michael Feuerstein, PhD, MPH
Professor, medical and clinical psychology and preventive medicine, Uniformed Services University of the Health Sciences, Bethesda, Md.; brain tumor survivor; editor, Journal of Cancer Survivorship: Research and Practice
Debra L. Friedman, MD
Associate professor, director, Survivorship Program, Fred Hutchinson Cancer Research Center, Seattle
Patricia Ganz, MD
Director, UCLA-LIVESTRONG Survivorship Center of Excellence, Los Angeles; professor, UCLA Schools of Medicine and Public Health
Mitch Golant, PhD
Vice president, research and development, The Wellness Community, Los Angeles; member, board of directors, Alliance for Childhood Cancer
Allan Goldberg, MPA
Executive director, First Descents, outdoor adventure programs for young adult cancer survivors, Vail, Colo.; sarcoma survivor
Wendy Harpham, MD
Author, public speaker, patient advocate, Dallas; lymphoma survivor
Barbara Hoffman, JD
Legal research and writing faculty, Rutgers School of Law-Newark, N.J.; founding chair, National Coalition for Cancer Survivorship; Hodgkin's lymphoma survivor
Jimmie Holland, MD
Wayne E. Chapman Chair in Psychiatric Oncology, department of psychiatry and behavioral sciences, Memorial Sloan-Kettering Cancer Center, New York City
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For the survivor, cancer may very well remain as their “sword of Damocles”: Family and friends see them as “cured,” and don’t understand why the survivor isn’t elated and swiftly “getting on” with their life. For the survivor, cancer can be as socially isolating as when first diagnosed as a patient.
—Winfield A. Boerckel
Persons diagnosed with cancer must become strong and competent self-advocates.
—Elizabeth Clark
We need a cultural change in oncology practice, so that beyond just treating cancer we also care for the needs of cancer survivors and proactively plan for their survivorship as active treatment comes to an end.
—Craig Earle
A crucial issue to all cancer survivors should be our ability, as a population, to mobilize and advocate on our own behalf in order to force the changes needed to make cancer a manageable and curable disease. Cancer needs to be a national priority, and with 10 million survivors, the power to make it so is in our hands.
—Allan Goldberg
As survivors we are faced with many opportunities and many challenges. ... We need to learn more about these challenges and how we can maximize our health and well-being over the years using scientifically sound information based on the best available research.
—Michael Feuerstein
A critical issue for survivors is being able to live full, healthy lives free of side effects from treatment.
—Anna L. Schwartz
As cancer evolves into a chronic illness, the challenge will be in living life to the fullest extent possible, given long-term and late effects of treatment. These include not only physical effects, but emotional and socioeconomic effects as well.
—Debra Thaler-DeMers
We need to recognize survivorship as a distinct phase of cancer care. Survivors need to receive a written summary of their cancer diagnosis and treatment and a survivorship care plan so that they can understand the long-term risks associated with the treatment, and also how to prevent or identify and manage late effects of cancer treatment.
—Lisa Vitkus
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Sandra J. Horning, MD
Professor of medicine, Stanford University School of Medicine, Stanford, Calif.; former president, American Society of Clinical Oncology; breast cancer survivor
Caroline Huffman, LCSW, MEd
Program officer, Lance Armstrong Foundation, LAF Survivorship Center Initiative, Austin, Texas
Linda A. Jacobs, PhD, RN
Director, LIVESTRONG Survivorship Center of Excellence at the Abramson Cancer Center, University of Pennsylvania, Philadelphia
Lovell Jones, PhD
Director, Center for Research on Minority Health, department of health disparities research; professor, department of biochemistry &molecular biology, University of Texas M.D. Anderson Cancer Center, Houston; founding chair, Biennial Symposium Series on Minorities, the Medically Underserved and Cancer
Susan Leigh, RN
Founding member, past president, National Coalition for Cancer Survivorship; survivorship consultant, Tucson, Ariz.; Hodgkin's, breast and bladder cancer survivor
Mary McCabe, RN, OCN
Director, survivorship program, Memorial Sloan-Kettering Cancer Center
Kevin Oeffinger, MD
Director, Program for Adult Survivors of Pediatric Cancer, departments of pediatrics and internal medicine, Memorial Sloan-Kettering Cancer Center
Jody Pelusi, PhD, FNP, AOCN
Oncology nurse practitioner, Arizona Oncology Associates, Sedona
Anna L. Schwartz, PhD, FNP,
FAAN
Professor, Scottsdale Healthcare Endowed Cancer Research Chair, Arizona State University, Phoenix; non-Hodgkin's lymphoma survivor
Lauren Shaiova, MD
Associate attending, department of neurology, division of pain and palliative care, Memorial Sloan-Kettering Cancer Center
Dan Shapiro, PhD
Director, Medical Humanities Program, associate professor of clinical psychiatry, University of Arizona College of Medicine; Hodgkin's lymphoma survivor
Ellen Stovall
President, CEO, National Coalition for Cancer Survivorship; Hodgkin's lymphoma survivor
Debra Thaler-DeMers, RN, OCN
Staff nurse IV, hematology-oncology, Peterson Cancer Treatment Center, Stanford University Hospital & Clinics; Oncology Certified Nurse of the Year, 2005; chair-elect, Oncology Nursing Society's Survivorship, Quality of Life and Rehabilitation Special Interest Group; lymphoma, skin and breast cancer survivor
Lisa Vitkus, MPH
Director, survivorship programs, University Hospitals Ireland Cancer Center, Cleveland
Jerome W. Yates, MD, MPH
National vice president, research, American Cancer Society, Atlanta
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